Sanofi is proud to support World Hemophilia Day | April 17, 2022

Be the Hero of Your Hemophilia Story

Stories can provide universal connections for the hemophilia community around the world. They can also be a powerful tool to educate, drive change and influence perceptions.

This World Hemophilia Day, we are sharing stories and tips on impactful storytelling to inspire the hemophilia leaders of tomorrow.

Bao | Hemophilia | Vietnam
Tucker | Hemophilia B | USA

Chapter One: Our Commitment

Aiming to Break Barriers in Hemophilia

We are inspired by the global hemophilia community – hear how we are focused on advancing care and helping to address unmet patient needs.

The Women Breaking Barriers in Hemophilia

Inspired by familial and personal connections, watch four women share their stories on how they are working to change the lives of those living with hemophilia.

At Sanofi, patients are at the center of all that we do.

Inspired by the Community

Bao | Hemophilia | Vietnam

We are inspired by the strength of the hemophilia community. These individuals drive us to discover and develop innovative therapies aimed at helping people with hemophilia live beyond the limitations of their condition.

Creating Connection

Tucker | Hemophilia B | US

Through the power of storytelling and universal connection, we can better adapt to change and grow stronger together.

Improving Access, Addressing Inequities

Hakob | Hemophilia | Armenia

Every day, we work to make a meaningful impact on the lives of the global hemophilia community – with a goal to improve standards of care, address health inequities and expand access for all.

Chapter Two: Explore Storytelling

Every good story has a hero.

Stories can be powerful. They connect us through shared experiences, motivate us to think differently and inspire us to try new things.

How to Tell Your Story

How to Tell Your Story Video

Watch this video to learn how to develop your story.

How to Tell Your Story One-Pager

How to Tell Your Story One-Pager

Click below to download an engaging storytelling activity.

Download

Chapter Three: Listen to heroes of the hemophilia community

Heroic Quests of the Next Generation Video

Heroic Quests of the Next Generation

Tim Demos, a person with severe hemophilia A, shares his personal story with the hemophilia community.

Chapter Four: Humanitarian Aid:

Our Global Responsibility

In 2020, Sanofi, together with SobiTM, extended their support of the WFH Humanitarian Aid Program with an additional donation of up to 500 million IUs* of factor therapy over a period of up to five years, fulfilling the 2014 pledge to donate up to 1 billion IUs* of factor for humanitarian use over a 10-year period.

This is the single largest donation of hemophilia factor therapy, representing an important first step to providing a sustainable supply of therapy to those most in need.

Providing Hope to the Hemophilia Community in Kenya Video

Providing Hope to the Hemophilia Community in Kenya

Changing Lives in Vietnam Video

Changing Lives in Vietnam

About Hemophilia and Humanitarian Aid

More than 75% of people with hemophilia have limited or no access to diagnosis and treatment. People with severe hemophilia in developing countries often do not survive to adulthood or often face a life of disability, isolation, and chronic pain. A predictable supply of factor therapy is essential to improving treatment and care. More than 75% of people with hemophilia have limited or no access to diagnosis and treatment. People with severe hemophilia in developing countries often do not survive to adulthood or often face a life of disability, isolation, and chronic pain. A predictable supply of factor therapy is essential to improving treatment and care.

Sanofi's and Sobi's Donation is Having a Far-Reaching Impact**

588M IUs* of clotting factor donated through 2020. 18,800+ people treated. 41 countries. 994 children under age 10 receiving  prophylaxis treatment. 229K+ acute bleeds treated. 3,300+ surgeries performed. *International units **All data as of 2015-2021 588M IUs* of clotting factor donated through 2020. 18,800+ people treated. 41 countries. 994 children under age 10 receiving  prophylaxis treatment. 229K+ acute bleeds treated. 3,300+ surgeries performed. *International units **All data as of 2015-2021

Chapter Five: More About the Hemophilia Community

Together, we can create a brighter future for those touched by hemophilia.

Hemophilia is a rare genetic blood disorder in which a person’s blood does not clot normally.

Steve | Hemophilia A | Kenya

This is due to missing clotting factor (proteins that help control bleeding) and can lead to spontaneous internal bleeds, often into joints, muscles or soft tissue, and prolonged bleeding after an injury or surgery.

Hemophilia is a chronic condition that primarily impacts males around the world.

Cliff | Hemophilia A | Taiwan

400K+ have severe forms of hemophilia.

80% have hemophilia A,

20% have hemophilia B.

Approximately 1 in 3 cases occur with no family history.